Diabulimia, also known as insulin omission, is one of the most commonly reported eating disorders among people with diabetes– it is a serious condition where people with diabetes skip or lower their insulin doses to not gain any additional weight.1,5 Beyond weight loss, some use this harmful practice for self-harm, to avoid the discomfort of injections, out of fear of low blood sugar, or due to feeling overwhelmed by their diabetes therapy. It's especially common in people with type 1 diabetes, but also affects those with type 2 diabetes on insulin therapy.
Not taking insulin or reducing the dosage causes blood glucose levels to increase.1 Then, the body breaks down fat more quickly and discharges excess glucose from the body through the urine leading to a rapid loss in calories.
Insulin is necessary for people with type 1 diabetes to survive, and skipping doses can cause diabetic ketoacidosis (DKA), a potentially life-threatening condition.6,7 Hyperglycemia will also increase the risk of long-term complications, including retinopathy, nephropathy, and vascular disorders.
How does diabulimia develop?
Diabulimia may develop from a mix of social, mental health, family, media, and physical factors.8 Some of the challenges that come with diabetes management may play a part, such as: 8–11
- Focusing on weight
- Constantly counting calories or carbohydrates in meals
- Difficulty keeping weight at a healthy level
- Needing to read food labels carefully
- Losing weight before type 1 diabetes and regaining it after treatment starts
- Poor relationships with a healthcare professional or team
- Eating to treat hypoglycemia, which may lead to guilt or weight gain
- Feeling shame over the way of managing diabetes
Diabulimia may start with a constant focus on managing diabetes and problems with body image, a sense of loss of control, a desire to lose weight or diabetes burnout.8
It is common for people who have recently been diagnosed with type 1 diabetes to lose weight before the diagnosis. Starting insulin therapy may result in regaining the lost weight. This can be difficult to deal with, leading some people to skip insulin doses.
No matter how it begins, it’s often hard to recognize the symptoms of and find successful treatments for diabulimia.
Diabulimia warning signs
There could be emotional, behavioral, and physical signs and symptoms of diabulimia. Many people with diabulimia often keep their condition a secret and may not seek treatment,10 but may show signs of hyperglycemia such as: 8,10
- Regular attacks of nausea or vomiting
- Weight loss
- Dry skin and hair
- Blurry vision
- A HbA1c of 9.0% or higher
- Frequent urination
- Excessive thirst
- Irregular or lack of menstrual periods
- Fatigue
- Episodes of DKA
Emotional and behavioral warning signs of diabulimia
The physical symptoms of diabulimia are often accompanied by emotional and behavioral warning signs such as: 12
- Prescriptions that don’t get filled
- Neglecting diabetes management
- Fearing low blood sugars
- Strict food rules
- Anxiety or depression
- Being secretive about diabetes management
- Avoiding eating in public or with others
- Worrying that insulin will “make me fat”
- Restricting foods to reduce insulin doses
- Withdrawing from loved ones
- Preoccupation with exercise, weight, food, or calories
- Excessive exercising
- Avoiding doctors appointments
- Anxiety about how their body looks
It's important to seek professional help if you suspect that you or someone you know may be experiencing diabulimia or any other eating disorder.
Potential consequences of diabulimia
Diabulimia, or insulin omission, is an extremely dangerous disorder.1 Having both type 1 diabetes and an eating disorder like diabulimia can cause high HbA1c levels and a higher risk of both short-term and long-term complications, which can lead to more hospital visits and longer stays.10,13,14
Short-term insulin omission will increase blood glucose levels, causing:8
- Fatigue
- Dehydration
- Risk of diabetic ketoacidosis (DKA)
Long-term high levels of blood glucose can cause: 8
- Damage to blood vessels, leading to eye problems (retinopathy)
- Nerve damage leading to chronic constipation or diarrhea
- Burning, tingling, or weakness in arms, legs, feet, or hands (known as peripheral neuropathy)
- Poor metabolic control
- Damage to kidneys, liver, or heart
Diabulimia may increase the risk of long-term complications from diabetes and can be deadly. 1
Diabetic ketoacidosis (DKA)
Diabetic ketoacidosis can lead to coma or death.13 Look out for DKA symptoms, such as:
- Thirst
- Hunger
- Frequent urination
- Nausea and vomiting
- Shortness of breath
- Fruity-scented breath
- Feeling tired or fatigued
DKA symptoms might require emergency medical attention.7 If you recognize any of these symptoms, consult with a healthcare professional as soon as possible.